Down Syndrome

 

 
What is Down Syndrome?

From the National Down Syndrome Congress (www.ndsccenter.org): 

Down syndrome is a common genetic variation which usually causes delay in physical, intellectual and language development.  The exact causes of the chromosomal rearrangement and This is my Masterpieceprimary prevention of Down syndrome are currently unknown.  Down syndrome is one of the leading clinical causes of cognitive delay in the world - it is not related to race, nationality, religion or socio-economic status.  The incidence of Down syndrome in the United States is estimated to be 1 in every 800 - 1,000 live births.  Of all children born in this country annually, approximately 5,000 will have Down syndrome.

While the likelihood of giving birth to a child with Down syndrome increases with maternal age; nevertheless, 80% of babies with Down syndrome are born to women under 35 years of age, as women in that age group give birth to more babies overall.

There is wide variation in mental abilities, behavior and physical development in individuals with Down syndrome. Each individual has his/her own unique personality, capabilities and talents.  30% - 50% of the individuals with Down syndrome have heart defects and 8% - 12% have gastrointestinal tract abnormalities present at birth. Most of these defects are now correctable by surgery.

Individuals with Down syndrome benefit from loving homes, early intervention, inclusive education, appropriate medical care and positive public attitudes.  In adulthood, many persons with Down syndrome hold jobs, live independently and enjoy recreational opportunities in their communities.

 

SNAFU's very own Down Syndrome expert!

Please visit SNAFU's very own Suze Black's blog HERE. Suze is SNAFU's Down Syndrome expert.  Please feel free to contact her at suze@valleysnafu.com

 

New DS Parent Info

If you are the parent of a newly diagnosed baby (whether born or unborn), please contact our resident expert, Suze Black, above.  She is an invaluable resource for families dealing with Down Syndrome.  Also, please check out this New Parent Guide and the New Parent packet HERE.  As always, SNAFU is here to help you in any way needed!

 

This site is still under construction!  You can help build it!

If you have helpful information or links for Down Syndrome that you would like to share, please contact us!

 

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